Connection & Community
Beyond the Sessions
Shared experiences brought us together through art, film, and celebration.
Under the Lights
A special screening of Miles Levin's short film.
Hidden Truths Project
Art exhibits and workshops celebrating creativity.
The Otherside Lounge
A new epilepsy-friendly space to gather and connect.
Youth Formal
An epilepsy-friendly prom for our teen community.
Providers' Banquet Dinner
An evening of thanks for our epilepsy care providers.
Community Building
Survivor-inspired challenges and new friendships with Ethan Zohn.
After-Hours Mixer
An evening for adult attendees to connect and celebrate.
Learning Together
Education Highlights
From advances in treatment to the realities of daily life, our 2025 sessions brought clinical expertise and lived experience into the same conversation. Explore four highlights below, or open the list for 12 more.
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Pediatric Epilepsy Surgery
Dr. Scellig Stone
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Memory and Vascular Health with Epilepsy
Dr. Rani Sarkis
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No Child Left Behind: The Impact of Epilepsy on Siblings
Siblings Panel
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From Kitchen to Feeding Tube: Making the Ketogenic Diet Work at Home
Illisa Nussbaum
Explore 12 more session highlights Show fewer session highlights
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The Epileptic Heart Syndrome
Dr. Trudy Pang
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NES Treatments
Dr. W. Curt LaFrance
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New Targeted Therapies in Pediatric Epilepsy: Enzymes, ASOs, and Gene Therapy
Dr. Phillip Pearl
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Panel: Families of SUDEP & Dr. Jong Woo Lee
Panel: Families of SUDEP & Dr. Jong Woo Lee
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Is It Rare Epilepsy? Do You Know The Cause of Your Seizures?
Dr. Kimberly Wiltrout, Beth Sheidley, Leah Schust
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It Takes a Team: Care for Rare & Complex Epilepsy
Dr. Heather Olson, Allison Moise
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Dravet Syndrome and Lennox Gastaut Syndrome: Empowering Caregivers to Expect More
Dr. Heidi Henninger
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In Their Own Words: Parents/Guardians Share Their Child's Epilepsy Surgery Experiences
Parent Panel
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From Shock to Strength: Navigating the Early Days When Your Child is Diagnosed With Epilepsy
Dr. Michelle Chiu
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Starting A New Chapter: From Pediatric Service To Adult Services
Dr. Laurie Douglass
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Epilepsy: The Third Person In Dating and Relationships
Dr. Regan Lemley
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When Seizures and Struggles Collide: A talk on Epilepsy and Suicide
Landis Weidner and Dr. Alicia Vitagliano
The 2025 Keynotes
Keynote Moments
Nicole Teeny and Ethan Zohn shared personal perspectives on endurance, resilience, and the strength we find in community.
Nicole Teeny
Filmmaker & creator of GIRL v. HORSE
What Running 50 Miles Against a Horse Taught Me About Epilepsy & Endurance
Drawing on her experience of epilepsy and her quest to race a horse over 50 miles, Nicole explored endurance, uncertainty, and pursuing ambitious goals.
Ethan Zohn
Survivor: Africa winner & co-founder of Grassroot Soccer
Community: The Ultimate Survival Tool
Through his experiences on Survivor and his cancer journey, Ethan reflected on resilience, kindness, and the people who help us through difficult times.
New England Epilepsy Convention · 2025 Recap
2025: A Convention to Remember
Expert knowledge. Shared experiences. New connections. Our 2025 convention brought people living with epilepsy, families, clinicians, and advocates together to learn from one another and build community.
Resources & Connections
Expo Hall Exhibitors
Our 2025 Expo Hall brought together 34 exhibitors, connecting attendees with care teams, community organizations, and epilepsy resources.
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- Xenon Pharmaceuticals
- Neurelis
- UCB, Inc.
- SK Life Science, Inc.
- Jazz Pharmaceuticals
- uniQure
- Upsher-Smith
- Stoke Therapeutics
- Lundbeck
- Medtronic
- Nutricia
- NeuroPace
- GeneDx
- Aucta Pharmaceuticals
- EpiWatch
- Cami Health
- BIAMA
- Laura Beretsky
- Nicole Teeny
- ZOR!
- Rare Epilepsy Network
- Hidden Truths Project
- Aries Foundation
- CVI Perkins
- EFNE Donation Center
- EFNE Resources
- EFNE Advocacy
- EFNE Events
- Boston Medical Center
- Mass General Brigham
- Boston Children's Hospital
- Beth Israel Deaconess Medical Center
- Children's Neurodevelopment Center
- Mass General Brigham Pediatrics
A Look Back
Photo Memories
Moments of learning, teamwork, and celebration from 2025.
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