Education

We are so excited about the sheer number of qualified speakers coming to this convention!

As we are expecting upwards of 60 educational seminars, we found it best to organize by “Themes”.

Our Educational Themes for this Convention, and the days they will occur are:

  1. Pediatric Epilepsy Education: Thursday, September 4th & Saturday, September 6th

  2. General Epilepsy Education: Thursday, September 4th & Saturday, September 6th

  3. Thriving with Epilepsy: Thursday, September 4th & Friday, September 5th

  4. Keto and Dietary Therapies: Friday, September 5th

  5. Rare and Complex Epilepsies: Friday, September 5th

  6. Educación en Epilepsia: El Sabado, 6 de Septiembre

All of our speakers are generously donating their time. Sessions and Speaker subject to change.

Keynote Session

8:00am ~ Friday, September 5th

  • After an epilepsy diagnosis turned her life upside down, Nicole Teeny set out to do something seemingly outrageous: run 50 miles against a horse. Inspired by her award-winning ESPN 30 for 30 podcast series GIRL v. HORSE, she shares what chasing the absurd taught her about endurance, risk, and what to do when the finish line keeps moving.

    Nicole Teeny is an award-winning filmmaker, writer, and podcast creator whose work has appeared on Netflix, Paramount+, and at the Venice Film Festival. She created GIRL v. HORSE—the Ambie-winning, Webby-nominated ESPN 30 for 30 series featured in TIME’s “100 Best Podcasts of All Time”—about her own quest to run a 50-mile race against a horse after an epilepsy diagnosis. She’s spoken at stages from SXSW to the United Nations about the power of storytelling for gender equity and social impact.

  • For Ethan Zohn, winning CBS’s SURVIVOR: AFRICA was the springboard to an exceptional young life of entrepreneurship, social purpose and advocacy. It was also the prelude to an incredible story, one of perseverance, accomplishment, and enduring spirit in the face of once unthinkable challenges. By sharing that story, Ethan inspires countless others around the globe. His message for young people, academia and the corporate community alike emphasizes character, resiliency, service, kindness and turning challenges into strengths.

    A fit, active, former professional soccer player who had traveled the world on behalf of the international health community through his foundation, Grassroot Soccer, Ethan became an unlikely face of cancer. Diagnosed not once but twice with CD20+ Hodgkin’s Lymphoma in the span of several years, Ethan endured years of aggressive treatment, including two stem cell transplants. Never losing optimism, spirit, or humor despite extraordinary rigors and setbacks, Ethan used his journey and considerable platform to connect with others and offer much-needed inspiration, advice, and comfort.

Pediatric Epilepsy Education

  • Dr. Christelle Achkar

    9.4.25 8:00am

    Should I/My Child Enroll in a Clinical Trial?

  • Dr. Britt Carlson Emerton, Dr. Agnes Chung

    9.4.25 9:15am

    Being The Calm Within The Storm…Understanding Your Child's Emotions and Behaviors 

  • Johanne Pino

    9.4.25 10:30am

    Navigating the IEP

  • Meghann Kelly

    9.4.25 1:30pm

    The Importance of Treating The Whole Child-Socially and Emotionally

  • Dr. Scellig Stone

    9.4.25 2:45pm

    Pediatric Epilepsy Surgery

  • Dr. Alexander Rotenberg

    9.4.25 4:00pm

    Advances in Pediatric Epilepsy Research

  • Dr. Phillip Pearl

    9.4.25 5:15pm

    New Targeted Therapies in Pediatric Epilepsy: Enzymes, ASOs, and Gene Therapy

  • Dr. David Sweetser

    9.6.25 8:00am

    When Does Genetics Play A Role in My Child's Epilepsy?

  • Kristine Binette, Mike Pereira

    9.6.25 9:15am

    School’s In Session: Rescue Medications and Seizure Action Plans
    -Joined by a Neurelis Ambassador-

  • Parent Panel

    9.6.25 10:30am

    In Their Own Words: Parents/Guardians Share Their Child's Epilepsy Surgery Experiences

  • Panel of Siblings of Children Living with Epilepsy

    9.6.25 12:45pm

    No Child Left Behind: The Impact of Epilepsy on Siblings

  • Dr. Michelle Chiu

    9.6.25 2:00pm

    From Shock to Strength: Navigating the Early Days When Your Child is Diagnosed With Epilepsy

  • Madeleine J. Oudin, Dr. Christina Briscoe

    9.6.25 3:15pm

    Infantile Spasms (West Syndrome): Diagnosis and Treatments

  • TBA

    9.6.25 4:30pm

    TBA

General Epilepsy Education

  • Dr. George Culler

    9.4.25 8:00am

    Moving Forward After Diagnosis…Where Do I Go From Here? 

  • Dr. Jason Richards

    9.4.25 9:15am

    Diagnosis of Non-Epileptic Seizures

  • Dr. W. Curt LaFrance

    9.4.25 10:30am

    NES Treatments

  • Dr. Teguo Djoyum

    9.4.25 1:30pm

    When Epilepsy Care is Far From Home 

  • Dr. Sydney Cash

    9.4.25 2:45pm

    What's On The Horizon for Epilepsy Research

  • Dr. Mark Richardson

    9.4.25 4:00pm

    Modern Approach to Epilepsy Surgery and Neuromodulation

  • TBD

    9.4.25 5:15pm

    TBD

  • Dr. Nirav Barot

    9.6.25 8:00am

    Innovations in Epilepsy Management - Clinical Trials

  • Dr. Amrit Misra

    9.6.25 9:15am

    Epilepsy Sugery: What Should I Expect?

  • Panel: Families of SUDEP & Dr. Jong Woo Lee

    9.6.25 10:30am

    Sudden Unexpected Death in Epilepsy: Insights from Families and Physicians

  • Industry Panel & Dr. Jong Woo Lee

    9.6.25 12:45pm

    Taking Action: Understanding Rescue Medications For Seizures

  • Dr. Trudy Pang

    9.6.25 2:00pm

    The Epileptic Heart Syndrome

  • Dr. Michelle Chiu

    9.6.25 3:15pm

    The Role of Technology in Epilepsy

  • Dr. Milena Pavlova

    9.6.25 4:30pm

    The Connection Between Sleep and Epilepsy

Thriving with Epilepsy

  • Olivia Adams

    9.4.25 8:00am

    Digital Tools and Technology for Epilepsy Care

  • Dr. Rani Sarkis

    9.4.25 9:15:am

    Memory and Vascular Health with Epilepsy

  • Seth Margolis

    9.4.25 10:30am

    Understanding and Coping with Epilepsy Stigma

  • Dr. Anna Graefe

    9.4.25 1:30pm

    Beyond The Seizures:  Learning About Co-Occuring Conditions in Epilepsy

  • William Murphy

    9.4.25 2:45pm

    From Disclosure to Accommodation: Understanding The Americans with Disabilities Act(ADA) and Navigating the Workplace

  • Pree Bhutani

    9.4.25 4:00pm

    Seizing Control: Navigating Puberty and Young Adulthood with Epilepsy

  • Mark Slater

    9.4.25 5:15pm

    What We Don’t Talk About When We Talk About Epilepsy

  • Kathryn Giordano

    9.5.25 9:45am

    HOBSCOTCH: Improving Quality of Life and Cognition with Evidence Based Epilepsy Self-Management

  • Landis Weidner and Dr. Alicia Vitagliano

    9.5.25 11:00am

    When Seizures and Struggles Collide: A talk on Epilepsy and Suicide

  • Dr. Regan Lemley

    9.5.25 2:30pm

    Epilepsy: The Third Person In Dating and Relationships

  • Parent Panel

    9.5.25 3:45pm

    When Your Child Has Epilepsy: Balancing Fear, Hope, and Everyday Life

  • Panel Discussion with Dr. Alicia Vitagliano

    9.5.25 5:00pm

    Breaking the Silence: The Weight We Carry

Keto and Dietary Therapies

  • Heidi Pfeifer

    9.5.25 9:45am

    Unraveling the Keto Diet for Beginners

  • Illisa Nussbaum

    9.5.25 11:00am

    From Kitchen to Feeding Tube: Making the Ketogenic Diet Work at Home

  • Panel Discussion with Dr. Anna Pinto

    9.5.25 2:30pm

    Affording Keto Without Breaking The Bank

  • Panel Discussion with Dr. Anna Pinto

    9.5.25 3:45pm

    Beyong The Kitchen-Keto in The Real World! 

  • Yingyi (Wing) Zhong

    9.5.25 5:00pm

    Fat 101 - Boosting Keto Friendly Fats in Kids’ Diets

Rare and Complex Epilepsies

  • Dr. Laurie Douglass

    9.5.25 9:45am

    Starting A New Chapter: From Pediatric Service To Adult Services

  • Dr. Kimberly Wiltrout, Beth Sheidley, Leah Schust

    9.5.25 11:00am

    Is It Rare Epilepsy? Do You Know The Cause of Your Seizures? 
    Presented by Rare Epilepsy Network
    Moderator: Ilene Penn Miller

  • Dr. Heidi Henninger

    9.5.25 2:30pm

    Dravet Syndrome and Lennox Gastaut Syndrome: Empowering Caregivers to Expect More

  • Dr. Heather Olson, Allison Moise

    9.5.25 3:45pm

    It Takes a Team: Care for Rare & Complex Epilepsy
    Presented by Rare Epilepsy Network
    Moderator: Ilene Penn Miller

  • Dr. Heather Olson, Anne Thompson Heller

    9.5.25 5:00pm

    Beyond Seizures - All the Other Symptoms
    Presented by Rare Epilepsy Network
    Moderator: Ilene Penn Miller

Educación en Epilepsia

  • Siete Conferencias

    El Sabado, 6 de Septiembre
    8:00am - 6:00pm

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